Friday, September 12, 2014

Support

It seems as though I need to credit my injury for enabling me to have the credibility that I do to have my position. I know that it was my recovery that has allowed me to represent hope to families of patients and patients themselves. My position has allowed me to become rather specialized in regards to this injury. I can’t believe that something that I wished and prayed had not occurred has opened up so many doors for me. I am going to attend a support group for survivors and family members. I am hoping that maybe I will meet some friends who are like minded to me. I know that although I get down on myself, in the arena of brain injury I am looked up to by survivors and families. It is good for me to look to my population and know that I am not alone. I think that the best description of this injury is the “hidden injury”. It is absolutely an injury that nobody besides maybe a plastic surgeon would immediately pick up on.

I say that because a plastic surgeon told me that half of my face was paralyzed. I was furious at his comment because nobody had ever said that to me. I invite any survivor to comment on any facial paralysis that they might have experienced along his/her journey. Often I meet with patients, recently I met with a group of stroke survivors who compared stories regarding the frustration of not being able to be understood. As with most things the speech can greatly be improved with time and therapy. Even though the population of brain injury survivors is a small one, there are a great many similarities amongst us. I have grown so much emotionally, yet I still do care a great deal about how I look. It feels strange to have many parts of me be so different. My injury was so long ago, but I will never forget about it. I am convinced that my mission now is to affect those who are venturing through the recovery. I think it will be good for my position if I get exposed to as many brain injury survivors and stroke survivors as possible. I would love to hear who has attended a support group and what the experience was like. As always I thank you very much for reading.

~Noelle

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